Walk for Hope exceeds goal of $5,000, more than 60 walkers show up to help; Concert draws big crowd...
This year's 'Walk for Hope' weekend included a concert with Larry Cordle, Hammertowne and Living Waters on Friday night and a walk and action on Saturday. There were concessions that were sold both days. All the money raised from the proceeds goes to HDSA not only for finding a cure, but also to council those who have, may have or whom are involved in Huntington's Disease in some way.
This year the Walk for Hope in Louisa sat a goal to raise $5,000 and they have exceeded that and are still having donations that are coming in. There were approximately 60 walkers that participated in the walk this year.
Many still ask why she would bother with raising the money, and this is her reply, "It gives me great satisfaction to know that there is something I can do to try to help someone who is in the position that I was in. Know that there is HELP and being one of God's children, I personally believe that is what He expects of us. To take on others burdens, to minister, to listen, to cry with them and pray with them, pray for them and try to give a brighter hope."
She went on to say, "It wasn't until I started the walk that I started to realize that we aren't alone."
Shona Wilks Smith, of Fallsburg, started the walk for Huntington's Disease three years ago for Louisa. Smith explained that her husband passed away in 2008 after suffering HD for 19 years.
Smith explained that all of her husband's siblings inherited HD and even their youngest daughter chose to be tested and is positive for HD.
This year Smith turned the walk over to Lynette Miller who is also dealing with HD personally.
"I consider it a privilege to be able to do this. The HDSA has been supportive to me since day one," Ms. Miller said. "My husband was diagnosed in 2012 and they sent someone to me. They send someone here (First Baptist Church) every three months for our support group."
The next support group will be in December.
Miller explained how most people want to keep their diagnosis hid but she wants everyone to know about it. She explained that the more that know and are educated about the disease then the better chance there is to find a cure. She also stated that it is great to meet other families that are dealing with HD and to know that you are not alone.
Paul Miller, Lynette's husband also participated in the walk and explained, "I really think that they (HDSA) are going to find something. I know right now there is no cure, of course, but I hoping that they are going to find one soon."
He said having a support group, which is funded by these walks, help to keep your mind off of the disease.
Huntington's Disease is a very misunderstood disease. The unsteadiness of the feet and the movements of the body is often mistaken for drunkenness even though they haven't had a drop of alcohol. Huntington's Disease is a devastating, hereditary, degenerative brain disorder for which there is no cure at the present time and there is only one FDA-approved treatment (Xenazine) for a symptom of HD. HD slowly diminishes the affected individual's ability to walk, talk and reason. Eventually, the person with HD becomes totally dependent upon others for his or her care. Huntington's Disease profoundly affects the lives of entire families -- emotionally, socially and economically.
HELP FOR TODAY. HOPE FOR TOMORROW. The HDSA's Mission is:
The Society is a National, voluntary health organization dedicated to improving the lives of people with Huntington's disease and their families.To promote and support research and medical efforts to eradicate Huntington's Disease.To assist people and families affected by Huntington's Disease to cope with the problems presented by the disease.To educate the public and health professionals about Huntington's disease.
To learn more about HDSA or HD you can go to Huntington's Disease Society of America - Homepage